Maternal Control and Self-Care of Children with Type 1 Diabetes

Authors

DOI:

https://doi.org/10.20435/pssa.v14i1.1324

Keywords:

Diabetes Mellitus, child health, self-care, Childrearing Practices, Mother-Child Relations

Abstract

Introduction: Self-care in children with chronic diseases can be promoted or impaired by parental behavior. This study aimed to analyze the relation between maternal control practices (appropriate support vs. psychological control) and self-care in children with type 1 diabetes mellitus (DM1). Method: The sample comprised 23 mothers of children with DM1, who responded to a semi-structured interview about maternal control practices and the Pediatric Diabetes Routine Questionnaire, which assessed children’s self-care. Results: Mother’s appropriate support, especially when expressed as explanations, encouragement, and positive affection, was an effective predictor of child self-care. Discussion: The appropriate support favors children’s achievement of autonomy, allowing them to become progressively more capable of taking care of their own health. Conclusions: Intervention programs for children with DM1 and their families should promote parents’ appropriate supportive practices.

Author Biographies

Karenina Oliveira Santos, Hospital Universitário Professor Edgard Santos (HUPES/UFBA)

Mestranda em Psicologia da Saúde pela Universidade Federal da Bahia (UFBA). Especialista em Terapia Analítico-Comportamental pelo Centro Universitário Jorge Amado (UNIJORGE), e em Saúde da Criança pela UFBA com aperfeiçoamento em Terapia Analítico-Comportamental Infantil pelo Instituto Transformação.

Patrícia Alvarenga, Universidade Federal da Bahia (UFBA)

Doutora em Psicologia pela Universidade Federal do Rio Grande do Sul. Professora do Programa de Pós-Graduação em Psicologia da Universidade Federal da Bahia (UFBA).

Antonio Carlos Santos da Silva, Universidade Federal da Bahia (UFBA)

Doutorando e mestre em Psicologia pela Universidade Federal da Bahia (UFBA). Bolsista FAPESB.

References

American Association of Diabetes Educators. (2008). AADE Position Statement. The Diabetes Educator, 34(3), 444-449. https://doi.org/10.1177/0145721708316625

Asari, U., Udavat, H., Shah, K., Kalola, A., Vaja, M., & Patel, P. (2019). A study of risk factors, clinical profile and outcome of new and established type 1 diabetes mellitus presented with diabetic ketoacidosis in children less than 14 years in a tertiary care hospital. International Journal of Scientific Research, 12(8), 8-10. https://doi.org/10.36106/ijsr

Barber, B. K. (1996). Parental Psychological Control: Revisiting a Neglected Construct. Child Development, 67, 3296-3319.

Barber, B. K., Stolz, H. E., & Olsen, J. A. (2005). Parental support, psychological control, and behavioral control: Assessing relevance across time, culture, and method. Monographs of the Society for Research in Child Development, 70(4), 1-137. https://doi.org/10.1111/j.1540-5834.2005.00365.x

Butler, J. M., Skinner, M., Gelfand, D., Berg, C. A., & Wiebe, D. J. (2007). Maternal Parenting Style and Adjustment in Adolescents with Type I Diabetes. Journal of Pediatric Psychology, 32(10), 1227-1237. https://doi.org/10.1093/jpepsy/jsm065

Cicchetti, D. V., & Sparrow, S. A. (1981). Developing criteria for establishing interrater reliability of specific items: Applications to assessment of adaptive behavior. American Journal of Mental Deficiency, 86(2), 127-137.

Crandell, J. L., Sandelowski, M., Leeman, J., Havill, N. L., & Knafl, K. (2018). Parenting behaviors and the well-being of children with a chronic physical condition. Families, Systems, & Health, 36(1), 45-61. https://doi.org/10.1037/fsh0000305

Dashiff, C., Suzuki-Crumly, J., Kracke, B., Britton, L., & Moreland, E. (2013). Cystic fibrosis-related diabetes in older adolescents: Parental support and self-management. Journal for Specialists in Pediatric Nursing, 18(1), 42-53. https://doi.org/10.1111/jspn.12010

Driscoll, C. F. B., Ohanian, D. M., Ridosh, M. M., Stern, A., Wartman, E. C., Starnes, M., & Holmbeck, G. N. (2020). Pathways by which maternal factors are associated with youth spina bifida-related responsibility. Journal of Pediatric Psychology, 45(6), 610-621. https://doi.org/10.1093/jpepsy/jsaa020

Godfrey, C. M., Harrison, M. B., Lysaght, R., Lamb, M., Graham, I. D., & Oakley, P. (2011). Care of self – care by other – care of other: The meaning of self-care from research, practice, policy and industry perspectives. International Journal of Evidence-Based Health Care, 9(1), 3-24. https://doi.org/10.1111/j.1744-1609.2010.00196.x

Goethals, E. R., Oris, L., Soenens, B., Berg, C. A., Prikken, S., Broeck, N., . . . & Luyckx, K. (2017). Parenting and treatment adherence in type 1 diabetes throughout adolescence and emerging adulthood. Journal of Pediatric Psychology, 42(9), 922-932. https://doi.org/10.1093/jpepsy/jsx053

Greene, M. S., Mandleco, B., Roper, S. O., Marshall, E. S., & Dyches, T. (2010). Metabolic control, self-care behaviors, and parenting in adolescents with Type 1 Diabetes. The Diabetes Educator, 36(2), 326-336. https://doi.org/10.1177/0145721710361270

Grey, M. (2011). Coping skills training for youths with diabetes. Diabetes Spectrum, 24(2), 70-75. https://doi.org/10.2337/diaspect.24.2.70

Grusec, J. E., & Lytton, H. (1988). Social development: History, theory, and research. Springer-Verlag Publishing.

Guo, J., Whittemore, R., & He, G.‐P. (2011). The relationship between diabetes self‐management and metabolic control in youth with type 1 diabetes: An integrative review. Journal of Advanced Nursing, 67(11), 2294-2310. https://doi.org/10.1111/j.1365-2648.2011.05697.x

Hannonen, R., Aunola, K., Eklund, K., & Ahonen, T. (2019). Maternal parenting styles and glycemic control in children with type 1 diabetes. International Journal of Environmental Research and Public Health, 16, 1-9. https://doi.org/10.3390/ijerph16020214

Hoffman, M. L. (1975). Moral internalization, parental power, and the nature of parent-child interaction. Developmental Psychology, 11(2), 228-239. https://doi.org/10.1037/h0076463

International Diabetes Federation. (2019). IDF Diabetes Atlas (9a ed.). IDF. https://www.diabetesatlas.org/en/

Kelley, M. L., Sanchez-Hucles, J., & Walker, R. R. (1993). Correlates of disciplinary practices in working- to middle-class African-American mothers. Merrill-Palmer Quarterly, 39(2), 252-264.

Kim, M. A., Yi, J., Wilford, A., & Kim, S. H. (2019). Parenting Changes of Mothers of a Child with Cancer. Journal of Family Issues, 41(4). https://doi.org/10.1177/0192513x19881191

Kuppens, S., & Ceulemans, E. (2019). Parenting styles: A closer look at a well-known concept. Journal of Child and Family Studies, 28, 168-181. https://doi.org/10.1007/s10826-018-1242-x

Landers, S. E., Friedrich, E. A., Jawad, A. F., & Miller, V. A. (2016). Examining the interaction of parental involvement and parenting style in predicting adherence in youth with type 1 diabetes. Families, Systems, & Health, 34(1), 41-50. https://doi.org/10.1037/fsh0000183

Leal, D. T., Fialho, F. A., Dias, I. M. A. V., Nascimento, L do, & Arruda, W. C. (2010) Diabetes na infância e adolescência: O enfrentamento da doença no cotidiano da família. HU Revista, 35(4), 288-295. https://periodicos.ufjf.br/index.php/hurevista/article/view/831/285

Lee, J., Yu, H., & Choi, S. (2011). The influences of parental acceptance and parental control on school adjustment and academic achievement for South Korean children: The mediation role of self-regulation. Asia Pacific Education Review, 13(2), 227-237. https://doi.org/10.1007/s12564-011-9186-5

Lee, S., Chen, J., Tsai, M., Chang, S., & Wang, R. (2020). Modeling individual, parental and peer factors to glycemic control in adolescents with Type 1 Diabetes: A prospective study. Journal of Advanced Nursing, 76(5), 1162-1171. https://doi.org/10.1111/jan.14317

León-del-Barco, B., Mendo-Lázaro, S., Polo-del-Río, M. I., & López-Ramos, V. M. (2019). Parental Psychological Control and Emotional and Behavioral Disorders among Spanish Adolescents. International Journal of Environmental Research and Public Health, 16(3), 1-13. https://doi.org/10.3390/ijerph16030507

Li, D., Zhang, W., & Wang, Y. (2015). Parental behavioral control, psychological control and Chinese adolescents’ peer victimization: the mediating role of self-control. Journal of Child and Family Studies, 24, 628-637. https://doi.org/10.1007/s10826-013-9873-4

Malaquias, T. S. M., Marques, C. D. C, Faria, A. C. P., Pupulim, J. S. L., Maracon, S. S. & Higarashi, I. H. (2016). A criança e o adolescente com Diabetes Mellitus tipo 1: desdobrar do cuidado familiar. Cogitare Enfermagem, 21(1), 01-07. https://revistas.ufpr.br/cogitare/article/view/42010/27251

McShane, K., Hastings, P. D. (2009). The New Friends Vignettes: Measuring parental psychological control that confers risk for anxious adjustment in preschoolers. International Journal of Behavioral Development, 33, 481-495. https://doi.org/10.1177/0165025409103874

Murphy, C., & Miller, V. A. (2020). Concurrent and longitudinal associations among parenting style, responsibility, and adherence in youth with Cystic Fibrosis. Children's Health Care, 49(2), 153-67. https://doi.org/10.1080/02739615.2019.1616295

Neylon, O. M., O'Connell, M. A., Skinner, T. C., & Cameron, F. J. (2013). Demographic and personal factors associated with metabolic control and self-care in youth with type 1 diabetes: A systematic review. Diabetes/Metabolism Research and Reviews, 29(4), 257-272. https://doi.org/10.1002/dmrr.2392

Nunes, N. G. (2013). Ações educativas em Diabetes Mellitus tipo 1: Conhecendo sua prática a partir de produções bibliográficas [Trabalho de Conclusão, Universidade Federal do Rio Grande do Sul]. https://lume.ufrgs.br/handle/10183/115440

Palmer, D. L., Berg, C. A., Wiebe, D. J., Beveridge, R. M., Korbel, C. D., Upchurch, R., . . . & Donaldson, D. L. (2004). The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology, 29(1), 35-46. https://doi.org/10.1093/jpepsy/jsh005

Paixão, C. (2020). Controle parental em contextos afetados pelo adoecimento de crianças com fibrose cística [Tese de doutorado não publicada, Universidade Federal da Bahia, Salvador].

Piccinini, C. A., Frizzo, G. B., Alvarenga, P., Lopes, R. S., & Tudge, J. (2007). Práticas educativas de pais e mães de crianças aos 18 messes de idade. Psicologia: Teoria e Pesquisa, 23(4), 369-378. https://doi.org/10.1590/S0102-37722007000400002

Pierce, J., & Jordan, S. S. (2012). Development and evaluation of the Pediatric Diabetes Routines Questionnaire. Children’s Healthcare, 41(1), 56-77. https://doi.org/10.1080/02739615.2012.643290

Romm, K. F., Metzger, A. & Alvis, L. M. (2020). Parental psychological control and adolescent problematic outcomes: A multidimensional approach. Journal of Child and Family Studies, 29, 195-207. https://doi.org/10.1007/s10826-019-01545-y

Silva, A. C. S. (2018). Impacto da doença crônica infantil sobre a saúde mental de cuidadores primários e o desenvolvimento socioemocional da criança [dissertação de Mestrado, Universidade Federal da Bahia]. https://repositorio.ufba.br/ri/handle/ri/28435

Taylor, S. G., & Renpenning, K. (2011). Self-care science, nursing theory, and evidence-based practice [DX Reader version]. http://lghttp.48653.nexcesscdn.net/80223CF/springer-static/media/samplechapters/9780826107787/9780826107787_chapter.pdf

World Health Organization. (2018). Diabetes. https://www.who.int/news-room/fact-sheets/detail/diabetes

World Health Organization (2016). Global report on diabetes. https://apps.who.int/iris/bitstream/handle/10665/204871/9789241565257_eng.pdf;jsessionxml:id=446331044927037FFDE7DB13B00715EE

Wysocki, T., Nansel, T. R., Holmbeck, G. N., Chen, R., Laffel, L., Anderson, B. J., & Weissberg-Benchell, J. (2009). Collaborative involvement of primary and secondary caregivers: Associations with youths’ diabetes outcomes. Journal of Pediatric Psychology, 34(8), 869i881. https://doi.org/10.1093/jpepsy/jsn136

Published

2022-06-09 — Updated on 2022-06-14

How to Cite

Santos, K. O., Alvarenga, P., & Silva, A. C. S. da. (2022). Maternal Control and Self-Care of Children with Type 1 Diabetes. Revista Psicologia E Saúde, 14(1), 49–62. https://doi.org/10.20435/pssa.v14i1.1324

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